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    • #18725
      Amanda
      Keymaster

      Good morning to all the pALS Caregivers in our community!  How are YOU doing? Is there anything you want to discuss?  Do you need ideas for any challenges?

    • #18734
      Roxanne Kusske
      Participant

      Just started my husband on Hospice yesterday.  He isn’t close to dying yet, although I don’t know for sure; but we need help and they are there in any way we need.  He refuses any type of life saving options, i.e. feeding tube, oxegyn, etc.  So I get to just watch him die a most unpleasant death.  Fortunately Hospice will be there to make him comfortable, and give me support, when the time comes.

      • #18741
        Dagmar Munn
        Keymaster

        Roxanne, I will keep you and your husband in my thoughts and prayers.

    • #18743
      Kathy stitz
      Participant

      Roxanne,

      I will also be praying for you and your husband.   It is really up to him as to what his wishes are but it must be very difficult for you as his wife and caregiver.   There is a lot of suffering with ALS and some pALS don’t want to continue suffering.   Best wishes to both of you.

    • #18749
      Roxanne Kusske
      Participant

      Thanks ladies!  Sometimes I just want to throw my arms up and say “I’m done”!  But I could never do that to him.   So it’s good to have more help now.

      • #18750
        Amanda
        Keymaster

        I would consider that a normal thought considering the stress level you and your husband are under!  You and your husband remain in my prayers.

    • #18751
      Kathy stitz
      Participant

      I agree that Hospice will be able to help you, but it’s a very difficult situation.  We just need a cure for this horrible condition.

    • #18758
      Dagmar Munn
      Keymaster

      Choosing Hospice is a wise decision in your husband’s case. They offer wonderful assistance to you both. And eliminates the “we have to do everything we can medically to extend life” philosophy of modern medicine. Breathe a sigh of relief. Cherish each day together.

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