Learning To Live with an illness is a skill
BioNews hosted an event last week end on mental health. In our discussions, one of our participants made a great comment. She is a medical student and she said, “Learning to live with a illness is a skill.” This statement resonated with me. I believe that when a person is diagnosed with an illness (such as ALS) they go through a cycle, similar to the grieving cycle https://www.verywellhealth.com/dabda-the-five-stages-of-coping-with-death-1132148
After spending a few days thinking about her statement I think it includes coming to terms and accepting a Rare Disease diagnoses is essential to living a mentally healthy life and being able to focus on the here an now. Enjoying everything you can and focusing on what you CAN do improves a person’s quality of life.
What do you think? What do you think impacts a person’s reaction to a Rare Disease Diagnoses? Are there skills involved? How do you improve your resilience?
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