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  • Looking for PALS for ALS News Today News Story

    Posted by hawken-miller on October 14, 2022 at 3:07 pm

    Hello everyone! I’m writing a large feature story about the use of big data (patient registries, electronic health records, etc.) in finding new treatments for ALS. To properly tell this story I’d like to talk to a few PALS who have contributed their personal health information to a registry and/or have been involved in a clinical trial. Additionally, if anyone is on an approved therapy for ALS, it would be great to hear your perspective on how patient data can be used to accelerate those approvals.

    If you are interested in speaking with me, please reach out to me at [email protected]. Thanks so much!

    maggie-broeren replied 1 year, 5 months ago 4 Members · 4 Replies
  • 4 Replies
  • Dagmar

    Member
    October 15, 2022 at 11:47 am

    This is exciting Hawkin… I know your project and article will be of interest to our forum members and I hope many will respond to your request.

  • Amanda

    Member
    October 18, 2022 at 11:33 am

    Hawken,
    That sounds amazing. Please keep us posted. I would love to read your feature story when it is completed.
    Amanda

  • lisa-bonahoom

    Member
    October 18, 2022 at 3:24 pm

    Happy to talk with you Hawken, if I can be of help. Lisa

  • maggie-broeren

    Member
    October 25, 2022 at 9:50 pm

    Yes, happy to help.

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