I just read Rick Jobus’ column, Chairway to Heaven. Rick offers great advice and encourages fellow pALS to look into getting a power chair that will meet their needs now, and giving consideration to future needs. He mentioned that there is assistance through medicare for chairs and it can take between 13-28 weeks to get a custom chair.
My family had some help through the ALS Association when my aunt was first diagnosed. After a few months, my father and uncle purchased a very nice wheel chair for my Aunt Linda. At the time, they did not realize that my Aunt Norma and my father both would have their time with the chair. Indeed, it was a great investment. After my father passed away, we donated the chair to a veteran who was disabled and could not get around without an electronic wheel chair (my father was retired Navy and we knew this would be what he would have wanted).
My questions for our members:
1. How many people have used medicare assistance to obtain a power wheel chair and what was the process like?
2. What other organizations have you utilized to help with assistive technology and devices such as a wheel chair.
3. What advice can you share with newly diagnosed pALS to help eliminate some of the hurdles when seeking out assistive technology and devices?
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