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Summer plans and ALS
How is your summer going? Have you been able to travel, or have company? If you have, what did you do differently because you or a loved one has ALS? Are you making spending time with loved ones a priority? -
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I was able to take a road trip from my home in FL to MD to attend my niece’s wedding. My friend and her husband drove me in my van. They are both nurses and knew exactly how to care for me. I am dependent on others for almost all my care. I am in my power chair 24 / 7. We navigated family restrooms at rest areas with no problem. The ALS Association in MD delivered a roll-in shower chair to our hotel and picked it up after we left. What a wonderful summer getaway. My nurse friends are such blessings to me.
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