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    • #15902
      Amanda
      Keymaster

      We are always striving to improve and to ensure that the information on the ALS forum is accurate and relevant to our community.  What kind of articles would you like to hear for our flash briefings? Would you prefer to listen to a research article or a column? Your feedback is very important to us, so please share your thoughts!

      • This topic was modified 1 year, 2 months ago by Amanda.
      • This topic was modified 1 year, 1 month ago by Marta Ribeiro.
      • This topic was modified 1 year, 1 month ago by Marta Ribeiro.
    • #17756
      Isabelle Z
      Participant

      At the moment it woud be how is the evolution of the deseases and how you can adapt psychologicaly to what happens ( excuse my Bad englisch)

    • #17761
      Isabelle Z
      Participant

      How are your days, what can you do and what kind of activities can you do? How do you organize your daylife with the illness, do you have to lie or to rest often in the day?

    • #17769
      Carolyn Barry
      Participant

      I tend to look for articles that deal with day to day practical needs that are due to having ALS. Reading about what others find helps them, keeps me focusing on a positive mindset.

      • #17795
        Amanda
        Keymaster

        Thank you for the feedback Carolyn, I will keep that in mind when selecting articles for the Flash Briefings!

    • #17817
      Carolyn Barry
      Participant

      Thanks Amanda, that would be great!

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