• All Discussions
•  Dagmar

  In Loving Memory of Kathy Stitz

  Amanda replied 1 year, 2 months ago 2 Members · 1 Reply

  In Loving Memory
•  Dagmar

  What Statistic About ALS Awakens You to How Much Our ALS Community Needs Awareness?

  Dagmar replied 1 year, 2 months ago 5 Members · 8 Replies

  Awareness and Advocacy
•  Dagmar

  Write a short answer to “Why does rare disease awareness matter to you” and join our Rare Disease Day initiative

  Dagmar replied 1 year, 3 months ago 2 Members · 4 Replies

  Awareness and Advocacy
•  Dagmar

  Speaking Up for Your Healthcare Needs

  Alan Larrivee replied 1 year, 3 months ago 1 Member · 1 Reply

  Living With ALS
•  Dagmar

  Record a short video of yourself and join our Rare Disease Awareness initiative

  Dagmar replied 1 year, 3 months ago 1 Member · 1 Reply

  Awareness and Advocacy
•  Dagmar

  “I have ALS … how do I set goals? And do I need them?”

  Kathleen B (Katie) replied 1 year, 4 months ago 2 Members · 1 Reply

  Living With ALS
•  Dagmar

  Have you had physical therapy sessions for your ALS?

  john hamilton replied 1 year, 4 months ago 12 Members · 25 Replies

  Living With ALS
•  Dagmar

  ALS Advertising: How Do You Want to Be “Wooed?”

  Kathleen B (Katie) replied 1 year, 4 months ago 2 Members · 2 Replies

  Awareness and Advocacy
•  Dagmar

  How can we make improvements to our forums?

  john hamilton replied 1 year, 4 months ago 1 Member · 1 Reply

  Using Our Forums
•  Dagmar

  How do you describe ALS to friends and family?

  Dagmar replied 1 year, 5 months ago 4 Members · 4 Replies

  Living With ALS
•  Dagmar

  Here’s a Tip: C.H.A.R.M. Your Way Through the Holidays

  Dagmar replied 1 year, 5 months ago 1 Member · 1 Reply

  Living With ALS
•  Dagmar

  Traveling and ALS: Share Your Challenging (and Humorous) Moments

  Dagmar replied 1 year, 5 months ago 3 Members · 4 Replies

  Living With ALS
•  Dagmar

  Acupuncture: Have You Tried It?

  MaryConnolly replied 1 year, 5 months ago 2 Members · 2 Replies

  Living With ALS
•  Dagmar

  Do you change your eating habits when you’re out in public?

  Jim Knepp replied 1 year, 6 months ago 3 Members · 3 Replies

  Living With ALS
•  Dagmar

  Winter is coming! What are your tips for avoiding weather-related ALS symptom aggravation?

  Alan Larrivee replied 1 year, 6 months ago 4 Members · 6 Replies

  Living With ALS
•  Dagmar

  Did you plan ahead for long-term care, or were you in denial?

  Cheryl Teribury replied 1 year, 6 months ago 8 Members · 8 Replies

  Living With ALS
•  Dagmar

  Volunteering to participate in ALS research: what are your pros and cons?

  Clint Williams replied 1 year, 6 months ago 8 Members · 10 Replies

  Research Topics
•  Dagmar

  Has ALS changed your perception of aging?

  john hamilton replied 1 year, 7 months ago 10 Members · 16 Replies

  Living With ALS
•  Dagmar

  Caregivers, what are YOUR warning signs that you need to take a break?

  Amanda replied 1 year, 7 months ago 4 Members · 4 Replies

  Caregivers and Family ​
•  Dagmar

  Dressing up for hospitals or appointments

  Lisa Bonahoom replied 1 year, 8 months ago 6 Members · 6 Replies

  Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
•  Dagmar

  What A.I. (artificial intelligence) home devices help you live with ALS?

  Dagmar replied 1 year, 8 months ago 2 Members · 5 Replies

  Living With ALS
•  Dagmar

  A Guide to the Language of ALS

  Dagmar replied 1 year, 8 months ago 1 Member · 1 Reply

  Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
•  Dagmar

  Do you have a morning ritual or routine?

   Dagmar replied 1 year, 9 months ago 0 Member · 0 Replies

  Living With ALS
•  Dagmar

  Summer COVID Updates – – How are YOU doing?

  Dagmar replied 1 year, 9 months ago 4 Members · 8 Replies

  COVID-19 and ALS