Mission Impossible? The Quest for Perpetual ALS Awareness
In 1992 the 102nd U.S. Congress declared, via joint resolution 174, that May…
Articles by Rick Jobus
On Planning to Get Punched
“Everybody has a plan until they get punched in the mouth.” –Mike Tyson…
With Apologies to Ian Fleming: Squaring Off with ALS and COVID-19
“The mind ought sometimes to be diverted that it may return to better thinking.” –Phaedrus…
Talking Trash with ALS
The ancient Greeks first introduced the term “parrhesia,” meaning…
Painting Broad Brushstrokes from ALS to COVID-19
Recently I chanced upon a re-broadcast of an entrée from the PBS series, “American Masters…
In the ‘Way Back Seat’ with ALS: Learning to Live on Autopilot
“Baby, you can drive my car …” I was reminded of that Beatles…
Facing the Rarefied Air of ALS with Dignity
“I don’t want to belong to any club that would have me as a member…
My Diagnosis Anniversary: Revisiting the Start of My ALS Journey
“Lately it occurs to me what a long, strange trip it’s been.” –Grateful Dead, “…
The Art of Declaring War on ALS
Upon the death of someone with ALS, a common theme is often invoked. Words such as heroic or…
I’m Thankful for the People Who Enrich My Life
It’s Thanksgiving Day tomorrow in the United States. Unsurprisingly, the evolution of its…