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    • #15556

      The research team that runs the fALS program in Miami reached out to me to schedule the next in person visit. It looks like things are slowly getting back on track.

      Have your medical teams started rescheduling appointments. What have you heard about how the pandemic impacted clinical trials and research?

    • #15563

      I am seen by the Temple clinic team in Philadelphia. Right now appointments are by telemedicine. It definitely takes longer to get an appointment. Temple is an approved site for the platform trial out of Massachusetts and the trial of Centaur. Neither trial has been launched at Temple due to Covid, although all the preliminary contracts and protocols are in place.
      quite Frustrating as I finally qualified for the Centaur trial. I am usually excluded From trials due to duration of illness ( I am a slow progressor) or my age (65). Waiting is the name of the game.

    • #15569

      My next REFALS-ES visit is back on live visit in two weeks. I like getting the updates on SVC and EKG.

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