Spouses and family members who step in and take on the role of caregiver for their loved one who has ALS – – are most likely first-time caregivers – – and not prepared for the many challenges ahead.
What or who helped you the most as you began your new role as a caregiver?
Was there a helpful resource that you could recommend to others? Who did you go to for answers? What key things would you now recommend to other first-time caregivers?