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Helping someone with ALS to feel less alone
Hi there,
I am not the primary caregiver for S, who is my sister’s husband. My sister is his caregiver but I am very close to them and their four kids and sometimes I feel so helpless. The other day, my BIL expressed through text (he no longer can talk) how alone he feels in this experience. I don’t know how therapy would work because he can’t communicate very quickly as he’s basically typing everything out and I wondered if it would be more beneficial to actually communicate with someone going through the same experience. I haven’t asked him yet if this is even something he’d want but the other day when he expressed feeling alone, my heart shattered. They have a busy house but everyone is coming and going and currently he’s chair bound because recently he fell and fractured his leg. I want to sit with him when my sister has to go to work but then, what kind of company does he really want? I wonder if proposing communication with someone online who is experiencing some of the same fears of death and the feeling of being ‘locked in’ might help him.
What do you think?
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