• This topic has 5 replies, 4 voices, and was last updated 3 years ago by Emma.
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    • #14314

      The world of technology is always improving and this benefits people with ALS and other illnesses. Although assistive technology is improving, many pALS continue to go with unmet needs. This website offers some information to help pALS and caregivers learn more about assistive technology and pALS. https://www.nm.org/healthbeat/medical-advances/technology-maximizes-quality-of-life-ALS

      What type of assistive technology are you using? Did insurance help with the expense? Are there organizations like the ALS Association that have loaner programs in your area?


    • #14330
      Andy Straw

      I can still speak reasonably well, but my hands and arms are very weak. I use Amazon Alexa technology quite a bit – this webpage describes my smart home set up: https://sites.google.com/view/alsinfo/equipment-and-tech/my-smart-home

      I also use speech to text software extensively: https://sites.google.com/view/alsinfo/equipment-and-tech/mouse-and-keyboard-alternatives?authuser=0#h.p_gbSR_HS7Ji3f

      I was able to get grants from my local ALS Association to pay for some of this.

    • #14332
      Kathryn F. Kennedy

      Extremely helpful and informative!  Thank you soooooo very much!

    • #14402
      Dagmar Munn

      Andy and Kathryn – – would either of you find useful a new phone app that uses your head motions to control your phone? I have been contacted by the app’s developer who is looking for feedback from pALS.

      Anyone else interested in this?

    • #14410
      Kathryn F. Kennedy

      Absolutely!  Please count me in!!!!!! And thank you so much!

    • #14411
      Dagmar Munn

      Kathryn – – I’ve sent you the link in a private message 🙂

    • #14416

      I live in a two story home.  As my ALS progressed in my legs, I found it more and more difficult to go up and down the stairs.  I had a chairlift company come to my home and give me a quote on a chairlift.  The quote was $12K and my insurance would not cover it.  They said it is not a necessity but would cover a hospital bed downstairs (my showers are upstairs).  I called my Doctor for some advice and they contacted the ALS Association.  They do have loaner chairlifts from time to time that people donate but did not have any at the time I called and said to check back.  I waited as long as I could (my husband pushing me up the stairs) and then I had to get it.  It’s a shame this is not considered a necessity by insurance.

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