Thanks to ALS, our family is raising kind and compassionate children
Mary Alice with her husband, Holt. (Photo courtesy of Mary Alice Poling) This is Mary Alice Poling’s story: My name is Mary Alice Poling and my son, Seth, who is 37 years old,…
ALS Awareness Month
Throughout May, ALS News Today is recognizing ALS Awareness Month with various stories that represent different perspectives on life with ALS that we hope to help inspire and empower our readers. These stories highlight some of the unique challenges of living with ALS, as well as stories of hope and inspiration and other topics that help to generate awareness among the ALS community. Follow along with the series here or visit us on Facebook or Instagram using the hashtag #ALSSpotlight.
May 30, 2023
by
Bionews Staff
Family, mutual respect, and love keep me pushing forward with ALS
Our first holiday since my tracheotomy. My wife ordered these shirts while I was in the ICU. Since then, these shirts have become a part of who we are. We now are selling…
Read more
May 25, 2023
by Bionews Staff
As an ALS caregiver, I learned the true meaning of strength
Britley Wells and Brian Jeansonne. (Photo courtesy of Britley Wells) This is Britley Wells’ story: Hi there! My name is Britley Wells, and I am a trauma intensive care registered nurse at…
May 23, 2023
by Bionews Staff
A patient’s reminder to find joy even in the toughest of times
Mary Kate Karam and Brian Jeansonne at Jazz Fest 2023, watching Mumford & Sons, Trombone Shorty, and John Batiste. Incredibly hot, but incredibly fun! (Photo courtesy of Mary Kate Karam) This is…
May 19, 2023
by Bionews Staff
To families affected by ALS, Hope Loves Company offers hope, support
Jodi O’Donnell-Ames founded Hope Loves Company after losing her husband to ALS. (Courtesy of Jodi O’Donnell-Ames) This is Jodi O’Donnell-Ames’ story: The term amyotrophic lateral sclerosis (ALS) was not a…
May 18, 2023
by Bionews Staff
Living with ALS has brought many changes, but we ‘keep on keepin’ on’
John Russell, his wife, Judy, left, and sister, Irene, in Vero Beach, Florida, in March 2020. (Photo courtesy of John Russel) This is John Russell’s story: I am one of the more fortunate…
May 16, 2023
by Bionews Staff
Living well with ALS helps patient become a hero to her heroes
Photos courtesy of Sarah Nauser. This is Sarah Nauser’s story: My name is Sarah Nauser and I was diagnosed with ALS in May 2018, at age 29. I grew up a huge…
May 12, 2023
by Bionews Staff
My dad’s ALS diagnosis changed the future I envisioned as a little girl
Tony Pripusich and his daughter, Sabrina Johnson. (Photo courtesy of Sabrina Johnson) This is Sabrina Johnson’s story: As a little girl, I always envisioned life as a mom. I grew up babysitting, enjoyed…
May 10, 2023
by Bionews Staff
‘Does ALS hurt?’ How I describe ALS symptoms and progression
The Poling family. From left, Liam, Erika, Bayler, and Seth. (Photos courtesy of Seth Poling) This is Seth Poling’s story: Hello, my name is Seth Poling, and I’m a 36-year-old husband to my…
May 3, 2023
by Bionews Staff
On parenting, living with ALS, and the complexities they share
From left, Eric, Allie and Logan Coultas. (Photos courtesy of Allie Coultas) This is Allie Coultas’ story: My name is Allie, and I am a 32-year-old artist, wife, and mother. My husband, Eric,…
Recent Posts
- A do-it-yourself approach to mental health while caregiving
- Largest ALS patient-based stem cell, biodata resource opens for research
- What I do when I’m feeling unmotivated in life with ALS
- First-in-human trial of ALS therapy ASHA-624 expected in early 2025
- EMA recommends NUZ-001 for orphan drug status in Europe