• All Discussions
•  Amanda

  When did you first hear those dreadful three letters…A….L….S ?

  Amanda replied 1 year, 5 months ago 8 Members · 10 Replies

  Awareness and Advocacy
•  Amanda

  Becoming an Advocate

   Amanda replied 1 year, 5 months ago 0 Member · 0 Replies

  Awareness and Advocacy
•  Amanda

  Would you seek out Albrioza treatment?

  Maureen Williams replied 1 year, 5 months ago 17 Members · 26 Replies

  Research Topics
•  Amanda

  How Do you Decide What Medical Interventions are Acceptable?

  john hamilton replied 1 year, 5 months ago 9 Members · 9 Replies

  Living With ALS
•  Amanda

  Is it a Happy Season?

  Alan Larrivee replied 1 year, 5 months ago 1 Member · 1 Reply

  Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
•  Amanda

  Getting over the Tofferson Fear

  Alan Larrivee replied 1 year, 5 months ago 1 Member · 1 Reply

  Research Topics
•  Amanda

  Here I Go Again

  Amanda replied 1 year, 6 months ago 8 Members · 8 Replies

  Research Topics
•  Amanda

  To Enroll, or Not to Enroll

   Amanda replied 1 year, 6 months ago 0 Member · 0 Replies

  Research Topics
•  Amanda

  ALS Support Groups: Pros and Cons

  Beth Rookey replied 1 year, 7 months ago 4 Members · 4 Replies

  Living With ALS
•  Amanda

  “How Do You Navigate Difficult Topics Like Mortality?”

  Angel Hernandez replied 1 year, 7 months ago 8 Members · 13 Replies

  Living With ALS
•  Amanda

  Caregivers, How can you Help One Another?

   Amanda replied 1 year, 7 months ago 1 Member · 0 Replies

  Caregivers and Family ​
•  Amanda

  Omicron – Oh my!

  Jerry Fabrizio replied 1 year, 7 months ago 2 Members · 1 Reply

  COVID-19 and ALS
•  Amanda

  Grief and our Mental Health

   Amanda replied 1 year, 7 months ago 1 Member · 0 Replies

  Living With ALS
•  Amanda

  Four Kinds of Services for pALS and Caregivers!! What could help you?

   Amanda replied 1 year, 8 months ago 0 Member · 0 Replies

  Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
•  Amanda

  I’m so Frustrated!! What about You?

  john hamilton replied 1 year, 8 months ago 7 Members · 8 Replies

  Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
•  Amanda

  As a caregiver, What Services Do You Use?

  George replied 1 year, 8 months ago 1 Member · 1 Reply

  Caregivers and Family ​
•  Amanda

  You’re Not You

  Amanda replied 1 year, 8 months ago 6 Members · 9 Replies

  ALS in the Media
•  Amanda

  What is Your Self-Care Plan?

  Louis Savarese replied 1 year, 9 months ago 4 Members · 4 Replies

  Living With ALS
•  Amanda

  Were YOU on the List? What could you do to help others stay OFF the Misdiagnosed List?

   Amanda replied 1 year, 9 months ago 0 Member · 0 Replies

  Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
•  Amanda

  The End of Summer

   Amanda replied 1 year, 9 months ago 1 Member · 0 Replies

  Living With ALS
•  Amanda

  When Should They Keep Their Mouth Closed?

  Fran Finney replied 1 year, 9 months ago 6 Members · 6 Replies

  Living With ALS
•  Amanda

  How Your Moderators work Together, and with YOU!

  Cheryl Teribury replied 1 year, 10 months ago 3 Members · 3 Replies

  Living With ALS
•  Amanda

  Sam Shepard Book

  Gwen McMartin replied 1 year, 10 months ago 5 Members · 5 Replies

  ALS in the Media
•  Amanda

  Preparations and Planning

   Amanda replied 1 year, 10 months ago 0 Member · 0 Replies

  Diagnosis​ ​Information​ ​and​ ​General​ ​Questions